We’re here to provide expert care, comfort, and all-encompassing support to children with life-threatening conditions and their families, helping them enjoy the best possible quality of life.

Our Community Nursing Team plays a vital role in linking hospital, home, and hospice care offering tailored support where and when families need it most. They work alongside families for every step of their journey, building strong relationships that help make care feel consistent and connected.

Things our nurses can offer include:

• Emotional and practical support for the whole family
• Clear, easy-to-understand guidance on a child’s care 
• Being there with families during hospital or medical appointments
• Helping families think through care plans and choices about their child’s care
• Staying in touch with hospital teams so everyone works together
• Helping manage symptoms to keep the child as comfortable as possible
• Gentle, thoughtful support around end-of-life care, if needed

The impact on the child

Our nurses focus on more than just clinical care. They work closely with families to understand their child’s condition, wishes and needs – and help plan care that not only makes them feel comfortable at every stage, but enables them to be children first and foremost - e.g. to have fun, play with siblings, go to school, make memories.

They’ll sit with families and discuss all of their options, so our nurses can ensure the child has the right care in the right place to best support them. They may also help children better understand their condition, if appropriate.  

The impact on families

Community Nurses build strong, trusting relationships with families whether that’s at home, in hospital, or in one of our hospices – helping families create quality moments together. They’re there to remind families that they have a network of support around them. They can help families address any worries or concerns they may have about hospice care, and signpost them to wider support services, both at the hospice and in the community.

Where and when support takes place

Our Community Nurses work across hospitals, homes, and our two hospices. They are based locally, and work closely with the local children’s community nursing teams. This means families usually work with the same nurse throughout their child’s journey – offering them consistency and familiarity.

While our nurses are based locally, they can also work with hospitals outside of our catchment area (such as Birmingham, Alder Hey etc.) ensuring families and children receive support no matter where they are. 

How to access community nursing support

Children must meet our eligibility criteria and be approved through our referral panel before full hospice services can be accessed. Referrals can be made by hospital consultants, GPs and other healthcare professionals, or by them families themselves. Our Community Nurses can support families throughout this process, even before a child is officially accepted.

Feedback from parents

“The hospice Community Nurse is amazing and helps me so much, chasing things up when I am overwhelmed and everything  they do is so helpful.”

Information leaflets for families

Getting in touch

If you would like to speak to a member of our team please contact us using the details below. 

Hope House
Email: [email protected]
Phone: 01691 671999

Tŷ Gobaith
Email: [email protected]
Phone: 01492 651900

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